Tuesday, 31 March 2009

Sally Walking . . . . . 1st Time

Had a few set backs, but full steam ahead now!!!!

Was thoughts of broncs, as still on lots of o2 and had Xray which high lighted a bad area so needed a CAT SCAN, but thankfully neither has happened. (Broncoscopy is where they ventilate yoou and get a sample of lung and wash them whilst asleep, but as she is on too much O2 they were and are relecutant to do so. Sally has retained alot (7-9kg) of fluid so this is part of why she needs o2 andher being breathless. Her pain wasnt controlled but now thankfully is and is now off the epidural. (she needed 2) and now is on oxinorm and co-drydamol. She went on the bike first time today and contintues to walk, but cant now as her feet and legs are the size of elephants!!!! We have taken a pic will post next post which, i promise will be sooner. Sally is using the "bird" at the mo to clear secreations and expand her lungs which is proving to be good.

Sally would like to thank you all for your prayers and thoughts they have sent her good vibes and make her feel a whole lot better.

Massaged her feet earlier with some strawberry body butter from the body shop, which was bought incedently by her ex husband, she was only moaning about that he didn't get her anything. when she was given it on mothers day she didn't realise it was from him.

Karen (Sally's Mum)


BreathinSteven said...

Go, Sally!!!! I'm so proud of you! Love the video of you walking... I know you've got a long ways to go -- and it really doesn't matter where you're going because if you're walking, you're moving in the right direction...

I hope for you, and your beautiful daughters, and your family that your road gets smooth ahead -- and I hope that your life with your new lungs is freaking amazing!!! Breathing with real lungs truly is amazing, Sally -- you'll be learning that very soon... It's a little rough right now, but it gets so much better...

I hope your journey is as amazing as mine has been... I have CF too and in about a week, I'll be celebrating my ninth year with beautiful, new lungs... I have some of my story at and I blog about organ donation at

You hang in there -- you've gotten through the most difficult parts, the wait and the surgery... What you're going through now is by no means easy, but you've been given the gift and now you're working to keep it... I know you'll do well -- you've got so much to live for!!!



Steve Ferkau
Chicago, IL USA

Jayne said...

Hello Sally,

Just 'found' your blog.

I'm so, SO pleased for you. I hope that every day gets better for you. Thinking of you and your girls.


Jayne xxx

Kerry said...

I'm in the U.S. (Michigan) and I have CF. I am married with two boys (age 3 and 12) and have been waiting for new lungs for 17 months now. I am so excited to see you get your lungs and walking and I can't wait to watch your progress and check in with your blog. Thank you for blogging (your mom too). If you don't mind, I would like to ask some questions as you go through this recovery. Just answer whatever you are comfortable answering. And I'll try to be brief.

How are your girls doing right now? What kind of pain problems were you having?

You are in my prayers, dear. More soon, Kerry

Gemma said...

go Sally go Sally!!!!