Firstly I will start with my list I made, I have managed to complete some of them. And they are:
1) I have managed to get back into Uni and the course that I had to postpone. I start Late September and I am only going to be doing one module a week, which is Wednesday 9.15am to 1.15pm, and this way I can gradually work myself into it without it being too much!! I am so excited about this. So Sunday I went into the attick/loft and sorted out all my uni course work and all my essays, so will slowly read through them and familiarise myself with it all again.
2) A job was going to be instead of going to uni. I wanted to see if I could train on the job rather than be stuck in a class room.... As I would like to learn this way as I feel it teaches you more, but I still don't know if this is possible, but will be keeping my ears open to this.
3) A Puppy - Well have decided that I will wait till at least the summer hols are over as I do not want to be tied down to a puppy when I now have freedom, to explore.
4 Have Sorted out a new car. I am getting a Golf 1.4 tsi. It is a nice car, and I shall get it in about 8 weeks time. Will be better for myself and my family. However we will miss the open top of the car. Thankfully we will keep it for most of the holidays and enjoy it.
5) This week, I have been enjoying my friends and family - and loathing them too. Well my parents mainly, but both for different reasons. Will explain after my list. . .
6) I'm still keeping my eye out to move house. There is this one home that I would like to move into, but having any chance of doing this I need to do a 3 way swap. Me into this lady's home, who's then in to someone else, who they then move into mine! COMPLICATED is all I can say!
7) Have decided on 2 schools for Kelsey. And one is way out of catchment area, but will try and will just wait and see.. I leave it into the hands of the gods.... What will be will be.
8) We have now got new bikes, all apart from Megan, as I need her to learn first on Kelsey's old bike, so this way she wont scratch it by falling off. And have been out bike riding, but not yet taught Meg how to ride on her own. She has fallen off a few times, but that was only in the back garden. The weather at the weekend was rather pants!
9) ^^AS above - Have bought 2 new bikes. One for me, and one for Kelsey.
10) Finally one thing I haven't yet done, and that is JOIN THE GYM! Will do it next week (hopefully) :-)
11) Start swimming ^^ Again, not yet done this, as I am not allowed to do this for a couple weeks.
12) Have started saving for going to OZ & NZ! Woooooooo!!!!!!!
13) - ONE THAT HAS NOT BEEN LISTED. AND THAT IS - I AM OFF OUT ON THE TOWN THIS SATURDAY NIGHT WITH MY FRIENDS!!!!! I CANNOT WAIT.... IT HAS BEEN SO SO SO SO SO SO AND SO MANY MORE SO'S LONG THAT I HAVE BEEN, AND PROVIDING THE WEATHER HOLDS OUT IT SHALL BE A GOOD NIGHT. I HAVE MY OUTFIT 70'S/80'S!!!!!! I AM WEARING A JUMP SUIT, LIKE FELICITY SHAGWELL - BUT IN BLACK WITH A BLUE BELT, AND LOTS OF BACK COMBED N CURLED HAIR!!!! NOT SURE TO GO FOR SHOES OR KNEE HIGH BOOTS!!! WILL POST PICS AFTER THE WEEKEND!
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Okay, went to Harefield for a Transplant Check up on Monday last week and all is really well. My white cell count is up, and my albumin is up, and my CRP is -1. To my knowledge it has never been this low even when I was healthy with my old lungs! So Wooop Wooop To this. And this time, I got a photo with my other good friend Lorraine, who at the weekend went to ASCOT! OOOOh, next year I must make it on my list of things to do! :-) Anyway in the morning, I had arranged my dad to come over and take my girls to school so I can set off at 7.30 at latest to arrive in London 9.30-10am. If I leave any later I would never make it in time to take my immuno tablets. Anyway, Kelsey had left her towel on the floor from the night before and I had asked her to pick up it up. So I shouted at her as mums do as she didn't do what she was told. Then my dad butted in saying I can't tell her off for things I do. And I said she does as I say not as I do and anyway I don't leave towels lying around, "oh what about the cushion on the chair outside, and I'm like, I didn't go outside last night mum did, as she smokes, she sits on it. Then he started going on about cat poo on the front lawn - knowing full well as I had transplant I don't go near that as is dangerous. Then he started shouting in front of my girls, saying THIS IS WHY YOUR MOTHER AND I USED TO ARGUE. He said, not actually said, but shouted this again, but mum never snapped and just ignored his ranting and raving... To which I nearly told the girls to go upstairs as I didn't want them to listen to this, and then I just said if your going to carry on just go. Then I said, I only said yesterday, what I say to my girls is how I want them to be bought up and its not up to him, as I said what annoys me most, is when I say to them, go and give gramps a kiss goodbye, he would say, oh leave them, they dont have to, so I stopped asking them too, and then he came out with I WAS NEVER ALLOWED TO GET AWAY WITH WHAT YOUR GIRLS GET AWAY WITH, I WAS ALWAYS MADE TO GIVE KISSES!!! Urrrrgh, I cannot win... This is what I told him, and so from now on, if I tell the girls to do something they do it and im to have no more interfering from him. And what does he do. SHOUT - TELL ME HOW TO BEHAVE WITH MY GIRLS.... Crikey my dad used to smack me all the time, id only have to breathe the wrong way, ironic having cf... But no, that was taking it too far, but I did used to get smacked allot as a kid, and I remember once, being 18.... More worried that he would find my tattoo and piercing. But that's part of growing up, well it was for me, and because of this, I always said I would never have my daughters bought up in an argumentative environment - and this is one of the reasons why me and their dad (ex husband) split up, as it wasn't fair on them. Unfortunately Kelsey remembers it all, but Megan thankfully doesn't at all, as she was far too young. I just hate it.... I really don't want my children to think its right to shout at one another. It churns my stomach, and I cannot stand verbal relationships too. If you argue, what it the point on being together.... It will only get worse, and as a romantic as I am, I have seen people be together and not argue like my mum and dad did and like me and my husband did, and I believe that watching my mum and dad argue, had a baring on our relationship, and now being older and wiser I can see this, and I would never again be in that sort of relationship or have my girls subdued to that atmosphere.
1) I have managed to get back into Uni and the course that I had to postpone. I start Late September and I am only going to be doing one module a week, which is Wednesday 9.15am to 1.15pm, and this way I can gradually work myself into it without it being too much!! I am so excited about this. So Sunday I went into the attick/loft and sorted out all my uni course work and all my essays, so will slowly read through them and familiarise myself with it all again.
2) A job was going to be instead of going to uni. I wanted to see if I could train on the job rather than be stuck in a class room.... As I would like to learn this way as I feel it teaches you more, but I still don't know if this is possible, but will be keeping my ears open to this.
3) A Puppy - Well have decided that I will wait till at least the summer hols are over as I do not want to be tied down to a puppy when I now have freedom, to explore.
4 Have Sorted out a new car. I am getting a Golf 1.4 tsi. It is a nice car, and I shall get it in about 8 weeks time. Will be better for myself and my family. However we will miss the open top of the car. Thankfully we will keep it for most of the holidays and enjoy it.
5) This week, I have been enjoying my friends and family - and loathing them too. Well my parents mainly, but both for different reasons. Will explain after my list. . .
6) I'm still keeping my eye out to move house. There is this one home that I would like to move into, but having any chance of doing this I need to do a 3 way swap. Me into this lady's home, who's then in to someone else, who they then move into mine! COMPLICATED is all I can say!
7) Have decided on 2 schools for Kelsey. And one is way out of catchment area, but will try and will just wait and see.. I leave it into the hands of the gods.... What will be will be.
8) We have now got new bikes, all apart from Megan, as I need her to learn first on Kelsey's old bike, so this way she wont scratch it by falling off. And have been out bike riding, but not yet taught Meg how to ride on her own. She has fallen off a few times, but that was only in the back garden. The weather at the weekend was rather pants!
9) ^^AS above - Have bought 2 new bikes. One for me, and one for Kelsey.
10) Finally one thing I haven't yet done, and that is JOIN THE GYM! Will do it next week (hopefully) :-)
11) Start swimming ^^ Again, not yet done this, as I am not allowed to do this for a couple weeks.
12) Have started saving for going to OZ & NZ! Woooooooo!!!!!!!
13) - ONE THAT HAS NOT BEEN LISTED. AND THAT IS - I AM OFF OUT ON THE TOWN THIS SATURDAY NIGHT WITH MY FRIENDS!!!!! I CANNOT WAIT.... IT HAS BEEN SO SO SO SO SO SO AND SO MANY MORE SO'S LONG THAT I HAVE BEEN, AND PROVIDING THE WEATHER HOLDS OUT IT SHALL BE A GOOD NIGHT. I HAVE MY OUTFIT 70'S/80'S!!!!!! I AM WEARING A JUMP SUIT, LIKE FELICITY SHAGWELL - BUT IN BLACK WITH A BLUE BELT, AND LOTS OF BACK COMBED N CURLED HAIR!!!! NOT SURE TO GO FOR SHOES OR KNEE HIGH BOOTS!!! WILL POST PICS AFTER THE WEEKEND!
___________________________________________________
Okay, went to Harefield for a Transplant Check up on Monday last week and all is really well. My white cell count is up, and my albumin is up, and my CRP is -1. To my knowledge it has never been this low even when I was healthy with my old lungs! So Wooop Wooop To this. And this time, I got a photo with my other good friend Lorraine, who at the weekend went to ASCOT! OOOOh, next year I must make it on my list of things to do! :-) Anyway in the morning, I had arranged my dad to come over and take my girls to school so I can set off at 7.30 at latest to arrive in London 9.30-10am. If I leave any later I would never make it in time to take my immuno tablets. Anyway, Kelsey had left her towel on the floor from the night before and I had asked her to pick up it up. So I shouted at her as mums do as she didn't do what she was told. Then my dad butted in saying I can't tell her off for things I do. And I said she does as I say not as I do and anyway I don't leave towels lying around, "oh what about the cushion on the chair outside, and I'm like, I didn't go outside last night mum did, as she smokes, she sits on it. Then he started going on about cat poo on the front lawn - knowing full well as I had transplant I don't go near that as is dangerous. Then he started shouting in front of my girls, saying THIS IS WHY YOUR MOTHER AND I USED TO ARGUE. He said, not actually said, but shouted this again, but mum never snapped and just ignored his ranting and raving... To which I nearly told the girls to go upstairs as I didn't want them to listen to this, and then I just said if your going to carry on just go. Then I said, I only said yesterday, what I say to my girls is how I want them to be bought up and its not up to him, as I said what annoys me most, is when I say to them, go and give gramps a kiss goodbye, he would say, oh leave them, they dont have to, so I stopped asking them too, and then he came out with I WAS NEVER ALLOWED TO GET AWAY WITH WHAT YOUR GIRLS GET AWAY WITH, I WAS ALWAYS MADE TO GIVE KISSES!!! Urrrrgh, I cannot win... This is what I told him, and so from now on, if I tell the girls to do something they do it and im to have no more interfering from him. And what does he do. SHOUT - TELL ME HOW TO BEHAVE WITH MY GIRLS.... Crikey my dad used to smack me all the time, id only have to breathe the wrong way, ironic having cf... But no, that was taking it too far, but I did used to get smacked allot as a kid, and I remember once, being 18.... More worried that he would find my tattoo and piercing. But that's part of growing up, well it was for me, and because of this, I always said I would never have my daughters bought up in an argumentative environment - and this is one of the reasons why me and their dad (ex husband) split up, as it wasn't fair on them. Unfortunately Kelsey remembers it all, but Megan thankfully doesn't at all, as she was far too young. I just hate it.... I really don't want my children to think its right to shout at one another. It churns my stomach, and I cannot stand verbal relationships too. If you argue, what it the point on being together.... It will only get worse, and as a romantic as I am, I have seen people be together and not argue like my mum and dad did and like me and my husband did, and I believe that watching my mum and dad argue, had a baring on our relationship, and now being older and wiser I can see this, and I would never again be in that sort of relationship or have my girls subdued to that atmosphere.
Anyway, I phoned my friend up just after 7am, asking if she would mind taking the girls to school so I could get to London in time, and the lovely person she is, said YES no problem! But really disappointed in my father. He is supposed to be there to support me, not be against me.
Anyway A Picture Of Lorraine & I At Harefield
Next Week, It Shall Be The Three Of Us, Kim, Lorraine & Me!I have bought the bins and filled them with celebrations and Haribo's, here is the picture for the lucky NHS Staff!!!! (though I have a confession, I have pinched a few!) Well they are sitting in my bedroom staring at me, saying EAT ME!
Found out that my beautiful niece has CPOX, which is uh'o for tansplantee's. I had a cold sore which arrived Saturday, and so Sunday I called the hospital and they put my on aciclovior 200mg 5x Daily! OUCH! Then Monday I find out about CPox, which I have touch wood no symptoms, and my blows are just getting better. (My predicted lung function is 2.61 over 3.01 At the moment I am blowing 1.55 (on average) over 1.85 on average. But I have blow a whopping 2.19 and I keep getting 2.02 and 2.09 so I think my average Fev1 will be higher than 1.85 soon...... I am really pleased with this, and since riding my bike my fevc and fev1 has been improving somewhat. So i recommend anyone who has had one, go ride a bike... Its much more fun that walking and to me seems to get me more out of breath and make the lungs work harder and your legs get toned too!!! :-) But hey that's just my advice and I am no doctor, I'm just going on experience, - so please don't sue! Here is a pic of me after my first bike ride, sweaty and hot loving my ice lolly. Scars and holes included! :-) And covered in factor 30!!!! Will post pics of our new bikes soon.
Friday night was the evening of my girls summer fete. Last year I was in hospital so I missed it, and I was so looking forward to going. I volunteered to help get the stalls ready. Okay I couldn't lift tables or anything heavy, but I did label the tombola prizes. The first one I labeled was no5 and I stuck it on a bottle of STELLA.. I love Stella I was saying to the other mum's and that I wanted that prize. Anyway in the evening, Megan and I went on the tombola and Megan put her hand inside and picked out no5!!!! We all had to laugh!!! How funny is that..... On the next stall Megan bought some raffle tickets and I looked at the DVD player thinking that looked nice of all the prizes on the table, and come Monday back at school, I found out she'd won it!!! I couldn't believe it...... I wish it was the same with all 6 no's from the lottery!!! :-)
Here Is A Picture Of The Prizes Lucky Megan Won!
However she is far too young to drink the bottle of Stella, so I think I will be forced into drinking that one! Yeah - likely story - forced that is!!!!!!!!!
I am ending here and will update soon.... Megan Today Tuesday had her first piano lesson. Will date more next time........... x x
2 comments:
Its great to hear about you doing al these things you couldn't do before and getting your life back!!
It's all so exciting!!
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